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The Join Parkinson’s Research Registry aims to connect individuals with Parkinson’s disease to clinical research opportunities through an innovative digital platform. Developed through collaboration between Newcastle University researchers, NHS professionals, and patient advocacy groups, this initiative addresses the critical challenge of low participation rates in Parkinson’s studies by creating a centralized system where patients can easily discover and express interest in relevant trials.
The Join Parkinson’s Research Registry builds upon the existing Research+Me framework while incorporating specialized features for Parkinson’s research, including personalized study matching and opt-in research newsletters. Its inaugural partnership with the EJS ACT-PD study — a major UK-wide trial investigating disease-modifying treatments — demonstrates immediate practical application.
By streamlining the connection between researchers and potential participants, the Join Parkinson’s Research Registry aims to accelerate therapeutic development and empower patients to actively contribute to scientific progress.
Image Credit: JPR
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